The Ultimate Fibromyalgia Forum

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To view my post on "How to introduce yourself", please click on this Category.  Help is also available in the "FAQ", which is located at the top of this page in the menu bar. 

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As more and more people are diagnosed with Fibromyalgia now that the powers that be have finally decided that it is a REAL illness, many more of us will be filing for disability with the SSA. This Forum is dedicated to the discussion of the process of filing for SSA Disability due to Fibromyalgia. I know you folks are out there so let me hear about your filing experience!

Fibromyalgia symptoms vary from patient to patient. The symptoms also vary in intensity and frequency. Please share your symptoms with the forum and perhaps you will help someone who needs to hear what you have to share about the symptoms you have, the frequency and intensity.

Getting a Fibromyalgia diagnosis is very difficult and can be a frustrating process. Please share your diagnosis process with others. There are people out there who are sick and the doctors can't find anything wrong with them. They need to know how others who have fibro have gone through the diagnosis process and finally developed a treatment program that works for them.

Hi, all.  Although the website has an entire page dedicated to available treatment protocols I thought it would be nice for the forum members to post treatments for various symptoms.  If it is published protocol, please try to give a reference, ie, a book title, article, media or web address.  If it is just something that you have tried and it helps you, then none of the refernce info is necessary.  You may know of a treatment that works for you, can pass it along to the other forum members and guests, who (after discussing it with their physician,) may benefit from trying it.

Keep in mind that you should never begin a new medical treatment protocol without first speaking to your doctor.  TUFRC is not responsible for the accuraccy/medical value of information posted here nor for any injury caused to persons who implement them into their treatment.   

Discussion about Chronic Fatigue Syndrome

Because of the nature of autoimmune disorders they are often misdiagnosed or not diagnosed at all. Recently in my research I came across a website about a "syndrome" that I had never heard about, (at least not that I could recall). It is called RSDS or Reflex Sympathetic Dystrophy Syndrome. While reading the information on the website at American RSDHope, I began to wonder, "Do I have this too?" (I plan to discuss this with my neurologist at my next visit!) Anyway, in making arrangements to exchange links with the webmaster of American RSDHope, I learned that the gentleman, Keith also has FM. I have invited him to visit the forum and post a topic or two on the subject and I hope that he soon will. Be sure and check back in the future for these topic posts. I am sure you will find them very interesting. The Following excerpt is from the RSDHope Website:

FOUR Main Symptoms/Criteria

There are FOUR Main Symptoms/Criteria for a diagnosis of RSDS: Constant chronic burning pain. Inflammation Spasms-in blood vessels and muscles of the extremities Insomnia/Emotional Disturbance (including limbic system changes)

Do you have it? Hopefully, Keith will be able to enlighten us, as well as arm us with questions we can ask our doctors about RSDS.

This forum is dedicated to those who are family members or friends of someone with Fibromyalgia. This disease touches not only the person suffering from it but impacts the relationships of those we know and love as well. If you are a family member or a friend of someone with Fibromyalgia, please post your comments here. Your words may help someone else who is dealing with the same issues.

Recently, I have been working on building another page in the website called "The Video Room", which meant creating another template, finding and adding the videos and getting it all ready to publish.  It was rather time consuming so I thought I would also add some on the forum and see if it were any quicker.  I like the Video Room being on the site but it never hurts to have more venues.  Besides here, you all can post videos that you believe our visitors will bwenefit from seeing.  You see, we are all on the very same quest for knowledge about this terrible disease.  We have a responsibility to make it easier for others and help them.  If you come across a video that you would like to add, please do so.

Please ensure that your video post is on topic, is helpful in nature,  and meets the posting criteria. 

Fibromyalgia can test the most diligent of christians.  It makes us angry, mean to others because of our own frustration and it makes us say bad words too!  (If you don't believe me, just read my blog!  LOL!)  I cannot tell you how many times I have called friends or family and begged them to pray for me.  If you have a prayer request please post it here and I will add you to my prayer list.  I am sure our other members will too. 

*You do not have to be a member to request prayer.  Guests may post here as well.

May God Bless!

Please use this forum for any discussion that isn't related to FM/CFS.  Talk about whatever you wish here but please respect others and no potty mouths.  LOL.